Today is Raise Your Voice For Type 1 Diabetes Awareness Day.
I should have had a post all ready to go, but we spent Friday at Children's Hospital. As most of you know, our youngest dear son was diagnosed almost four years ago with Type 1 diabetes and he had an appointment on Friday to go to the diabetic clinic for a check-up and lab work. The hospital is three hours away and the appointment takes up most of the morning. Our first visit we were there all day long, only stopping for lunch. After dear son is checked in he is put in an exam room and then the lab tech comes and draws his blood for an A1c and other tests. Then a doctor, nurse, and dietitian rotate coming to talk with us. We have also had visits from a counselor, chaplain, therapy dog, and even Santa Claus. You never know who is going to open the door and walk in.
This visit was uneventful. Dear son's A1c was 7. The doctor wants it to stay below 8. We took in a 10 hour urine to check for long term kidney damage which can be a complication of uncontrolled Type 1. They also drew labs for a thyroid profile and checked his cholesterol.
I guess of all the things I would want people to know about Type 1, is that my son doesn't have Type 1 because of something he did wrong. He did not get Type 1 from eating too much sugar or watching too much TV and playing too many video games. He did not get Type 1 from being overweight. Type 1 diabetes is an autoimmune disorder. Antibodies attacked his pancreas, killing off all the cells that produce insulin. Type 1 diabetics have to take insulin to live. They do not have a choice. They will die without it. Dear son takes two different types of insulin. The first one is a fast acting insulin that he takes with meals. The dosage is based on the amount of carbs he eats. The second insulin is what is called a basal insulin. It lasts 24 hours and does not peak like the fast acting insulin dose. The basal insulin just works in the background for the times that the body needs insulin other than at meals. The two insulins must be balanced to avoid high and low blood glucose readings. Dear son checks his blood many times a day and dear husband and I check him through the night. Man-made insulin is a life saver, but it doesn't come close to working as effectively as pancreas-produced insulin. This means we are constantly tweaking the dosages and trying to find patterns. There are so many different things that can affect blood sugar levels that it is impossible to completely control the disease. Ideally, 50% of our son's numbers should be in target range. His target range is 80-180 now. You cannot imagine how hard it is to get 50% in this range.
I guess the other thing I would want people to know is that you are never free from Type 1. I have written about this before. You have to deal with it day and night, every couple of hours, all day long. You do not get to take a vacation from it. It does not go away. It will not get better unless there's a cure and currently there is not a cure. It is a huge responsibility and it can really drain all your time and energy on the bad days. We try not to let it control our lives, but really there is no escaping it. You learn to manage. You adapt. You do what you have to do and then you get up the next day and do it all over again. You stay up during the night for checks and you watch and wait for lows. You pray for strength and wisdom and a cure.
Please help us pray for a cure.
Note: To read about other people dealing with Type 1 click
HERE. I haven't had a chance to read them yet, so use caution. I hope they are all G rated, but I am not sure.